Researchers
KILBERG, MARISSA
Children's Hosp of Philadelphia
INCLUDE Grants
PARTNERS: Program to Advance Research and Transdisciplinary TraiNing in the CarE of PeRsons with Down Syndrome
Grant Number
R25HD118212
NIH Institute
NICHD
Mechanism
R25
NARRATIVE A major obstacle to addressing gaps in our understanding of Down Syndrome [DS] and its related
co-occurring conditions is the limited availability of a trans-disciplinary, collaborative work force with expertise
and practical knowledge of working in the clinical research setting with persons with DS. This week-long in-
person short course for health professional and graduate students, medical residents, post-doctoral fellows, and
early-career investigators intends to foster the development of a new generation of investigators from diverse
disciplines and backgrounds to pursue research in youth and adults with DS. The program will pursue a “whole-
person” curriculum that considers clinical, social, legal, ethical, and research issues and perspectives related to
persons with DS.